
Frank at Machu Picchu
By Frank Seidel, Director - Projects Abroad France
Yesterday was a special day for me. Basically: I have the privilege of saving somebody else’s life. I have been identified as a donor of hematopoietic stem cells (HSC) for a patient suffering from a live threatening disease like leukaemia and the donation process started yesterday. Such donations are more commonly known as bone marrow donations. You can maybe save somebody’s life as well, by joining your national stem cell donor registry (list at the end of this post).
Maybe you are already registered, but the fact is that too many potential donors aren’t. The worldwide database of donors has currently only a bit more than 12.6 Mill entries, which IMHO is simply ridiculous given the population of at least the developed world. Because there are so few donors, not all patients needing stem cells find appropriate donors and therefore die. So if you are not registered yet, please join your national registry. You may be able to give someone a future, a new life.
To be precise, my donation process really started more than 16 years ago, when I registered with ZKRD, the German stem cell donor organisation. At first, they took only a small blood sample to determine roughly my tissue type. Then, over the years I was contacted two or three times because my tissue type was similar to the one of a patient and additional tests were made to check a potential compatibility. But it never went further. When I moved to France, where I currently head the French office of Projects Abroad, my data was already available to the French organisation ESF because they are part of a global network.
Then, this October, ESF called again. Some more tests were made that indicated that I was the most appropriate donor and finally I got a very thorough health check to make sure that my own health wouldn’t be threatened by the donation.
The process identified for me is the collection of peripheral blood stem cells through a procedure called apheresis, which some might know from their blood plasma or platelets donations. During the three days prior to the apheresis I receive injections of so called stimulating factors that make HSC migrate from my bone marrow to the blood. Yesterday, I entered the final donation phase as I received my first stimulating factor injections.
I’d like to thank Will, the administrator of this blog, who agreed that I use Projects Abroad’s blog to do my small share in promoting stem cell donations. I will report in the next few days how the donation process continues.
Although volunteering abroad is not exactly the same as donating stem cells, I do think that there is a link between my motivation to volunteer as potential donor many years ago and my motivation to work for Projects Abroad today. Both are about making a very reasonable effort to brighten the perspectives of somebody else. If you are considering volunteering with Projects Abroad, you should also consider joining a stem cell donor registry.
The website of the global network is Bone Marrow Donors Worldwide.
Further direct links to some national registries are below. Joining is easy.
Australia: Australian Bone Marrow Donor Registry
Austria: Österreichische Knochenmarkspendezentrale
Belgium: Belgisch register voor beenmergdonoren/Registre belge des donneurs de moelle osseuse
Canada: OneMatch stem cell and marrow network
Denmark: Danske Knoglemarvsdonorregister
France: Registre France Greffe de Moelle
Germany: Zentrales Knochenmarkspender-Register Deutschland
Ireland: Irish Unrelated Bone Marrow Registry
Italy: Registro Italiano Donatori Midollo Osseo
Japan: Japan Marrow Donor Program
Netherlands: Stichting Europdonor
New Zealand: New Zealand Bone Marrow Donor Registry
Switzerland: Stiftung Blut-Stammzellen/Fondation Cellules Souches de Sang/Fondazione Cellule Staminali del Sangue
UK: British Bone Marrow Registry
US: National Marrow Donor Program